- Last Updated on Monday, 09 January 2017 13:23
PRO-RBDD is an international collaborating network that has developed a web database designed to prospectively collect clinical and laboratory data of patients with coagulation factor deficiencies in order to evaluate prevalence, bleeding frequency and management, as well as consumption of treatment products and related complications.
Current studies are analysing fibrinogen and factor XIII deficiencies.
Starting from December 2016 the database has been integrated with new pages for data collection about the following deficiencies:
• Factor V and Factor V+VIII deficiencies;
• Factor XI deficiency
• Thrombotic manifestations can also be entered to update the existing patients records.