Rare Bleeding Disorders is an international collaborating network that has developed a web database designed to prospectively collect clinical and laboratory data of patients with coagulation factor deficiencies in order to evaluate prevalence, bleeding frequency and management, as well as consumption of treatment products and related complications.

 


arose from the need to facilitate the collaboration and information sharing among people dealing with Rare Bleeding Disorders.

 

«There are no incurable diseases, only the lack of will.

There are no worthless herbs, only the lack of knowledge.»

Ibn Sina

 

 

«Good information is the best medicine»

Donald A.B. Lindberg,

Director of United States National Library of Medicine